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About us
For VWM patients
Clinical Trials
Updates
News
Publications
Links
Partners
Contact
Register
News & Updates
Please find here an overview of our latest news, updates, or events.
21 augustus 2023
The core protocol for phase 2/3 clinical trial(s) in VWM is now published
The core protocol for phase 2/3 clinical trial(s) in VWM, aimed to serve as a template for industry-sponsored clinical trials in VWM, is now published.
26 april 2023
Calico Life Sciences Announces First Participant Dosed in Phase 1b Clinical Study Evaluating ABBV-CLS-7262 for the Treatment of Vanishing White Matter Disease
Calico Life Sciences Announces First Participant Dosed in Phase 1b Clinical Study Evaluating ABBV-CLS-7262 for the Treatment of Vanishing White Matter Disease
26 maart 2023
Calico starts phase 1b study evaluating safety, tolerability and pharmacokinetics of eIF2B activator
Calico starts phase 1b study evaluating safety, tolerability and pharmacokinetics of eIF2B activator.
9 februari 2023
The VWM Consortium designed a ‘core clinical trial protocol’ – paper submitted
The VWM Consortium designed a 'core clinical trial protocol', aimed to serve as a template for industry-sponsored clinical trials in VWM.
5 januari 2023
The VWM Consortium paper is Neurology Genetics’ #2 most read paper of 2022!
In an end-of-the-year countdown on Facebook, the scientific journal ‘Neurology: Genetics’ stated that their #2 most read paper of 2022 is the VWM Consortium paper on therapy trial design.
29 augustus 2022
Public Statement of VWM patient advocates regarding clinical trial design and participation
This public statement from advocates of the VWM community demonstrates their close partnership with the VWM consortium in optimizing clinical trial design and future patient participation.
25 juli 2022
1 year update Guanabenz VWM clinical trial
The first trial participant was included on May 31st 2021, in this update we reflect on the first year of the clinical trial.
7 februari 2022
The VWM consortium published an expert opinion on therapy trial design
The first paper published by the VWM consortium & patient associations describes recommendations for VWM clinical trial design.