News & Updates

The first paper published by the VWM consortium & patient associations describes recommendations for VWM clinical trial design.

We are pleased to announce that the first three VWM patients have been enrolled in the study and more patients will follow soon.

This conference focuses on providing scientific information to keep families informed of progress in the leukodystrophy field. Please join our presentation live.

Amsterdam UMC developed two mouse models for VWM. These mice harbor VWM genetic mutations, which result in a phenotype similar to human VWM patients.