7 februari 2022
The VWM consortium published an expert opinion on therapy trial design
The first paper published by the VWM consortium & patient associations describes recommendations for VWM clinical trial design.
2 juni 2021
Guanabenz VWM clinical trial patient enrollment has started
We are pleased to announce that the first three VWM patients have been enrolled in the study and more patients will follow soon.
1 juni 2021
First VWM consortium presentation at ULF family conference – June 25th 2021
This conference focuses on providing scientific information to keep families informed of progress in the leukodystrophy field. Please join our presentation live.