5 januari 2023
The VWM Consortium paper is Neurology Genetics’ #2 most read paper of 2022!
In an end-of-the-year countdown on Facebook, the scientific journal ‘Neurology: Genetics’ stated that their #2 most read paper of 2022 is the VWM Consortium paper on therapy trial design.
29 augustus 2022
Public Statement of VWM patient advocates regarding clinical trial design and participation
This public statement from advocates of the VWM community demonstrates their close partnership with the VWM consortium in optimizing clinical trial design and future patient participation.
25 juli 2022
1 year update Guanabenz VWM clinical trial
The first trial participant was included on May 31st 2021, in this update we reflect on the first year of the clinical trial.
7 februari 2022
The VWM consortium published an expert opinion on therapy trial design
The first paper published by the VWM consortium & patient associations describes recommendations for VWM clinical trial design.
2 juni 2021
Guanabenz VWM clinical trial patient enrollment has started
We are pleased to announce that the first three VWM patients have been enrolled in the study and more patients will follow soon.
1 juni 2021
First VWM consortium presentation at ULF family conference – June 25th 2021
This conference focuses on providing scientific information to keep families informed of progress in the leukodystrophy field. Please join our presentation live.